On March 17th, I thought I would be starting a Phase 2 clinical trial at St Vincent’s Comprehensive Cancer Center. Unfortunately, I am not a candidate for the trial since all my test results didn’t meet the protocol guidelines. While I feel great, my MM markers insist they be assaulted with some weapon in the MM arsenal. I will begin treatment next week with an oral dose of Thalidomide, requiring only monthly follow-ups.
As spring approaches once again, I have made some fundraising commitments. I am reaching out to you even in this challenging year of financial upheaval because it is the work of the Multiple Myeloma Research Foundation-- their support of new treatments and partnerships with drug companies that continue to keep me and MM patients alive. When I was diagnosed in March 2006, I was told the average life expectancy was two-three years. Now three years later, I feel vibrant and strong, having had the benefit of two drugs the MMRF helped bring to market in the last two and a half years.
On Tuesday, May 5th at the 7th annual MMRF Laugh for Life Benefit will be at BB King in New York City. I am honored to serve as a committee member for this very special event, a night that will be filled with laughter—for me some of the best medicine for whatever ails you. Tickets for this event are $250.
On June 7, I will walk in the 5K Race for Research in New Canaan, Ct as I did last year with my sister Donna. We’d love to have a bigger team this year so let me know if you can join us. If you can't join us, please sponsor our walk.
Finally on August 30, Donna and I will participate in the Half Marathon in NYC. We are both very excited about training for this event as well as garnering your support.
This is a challenging time for all of us in so many ways. We are facing a myriad of unexpected changes: to our bodies, our finances, our approaches to life… I am grateful for this opportunity to raise awareness as well as money for MM. My involvement bolsters my hopefulness about the future. I am proud to say that 95% of the funds raised by the MMRF go directly to research. These research grants provide the best hope for patients with this to date incurable disease. It is through the development of these new drugs that the word incurable can be replaced with a far more benign word like chronic as researchers continue to pursue the cure. Finally these same research dollars will lead to development of new treatment options for 19 other types of cancer.
I appreciate all of the ways in which you have supported me through this experience. I have needed all kinds of support and am delighted to say that you have shown up for me in so many amazing ways.
Feel free to email or call if you have any questions about the events. I will keep you posted on the timetables for your donations. I’d love to have you join me in New Canaan, Ct on June 7th for Race for Research.
With love and gratitude,
Corinne
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